Monthly Archive: June 2016

June 29, 2016

Phase 1 of this journey is rapidly coming to a close. It’s hard to believe it’s been 7 weeks since our world turned upside down. We have finally settled into a normal, comfortable routine. Safe is the word that comes to mind. We have made wonderful friends, Kayleigh is tolerating radiation so well, the doctors believe the tumor is probably responding well because her symptoms are so much better… Safe.

A large part of me would like to stay right here in this happy little bubble for the foreseeable future but I know that isn’t what God has in store for us. Our time in phase 1 is up and it’s time for new adventures, new lessons, more friends, it’s time for change. Tomorrow we will
start packing and loading and Friday we will drive home away from safe – but that is OK. We know that God has a plan

Please continue to pray with us for clear direction for phase 2 and for Kayleigh’s complete healing and no need for phase 2!

Until tomorrow,


We love our Anna!image

Playing with friends image


June 28, 2016

Thank you Lord for another wonderful day in Memphis!

Today was radiation treatment #27 of 30 and Kayleigh is feeling great. We met with Kayleigh’s radiation oncologist who has been out of town for the past 3 weeks and he seemed surprised and quite pleased with how good and strong she looks. Tim and I have no idea what “normal” is for this but we get the feeling that Kayleigh is doing very well. At this point the only symptom we see is a slight droop in her right eye – all other symptoms are gone and she is even gaining strength and speed in her movements from when we began. We can do nothing but say thank you Lord for the way He has continued to bless us!

I talk often about how God cares for even the smallest of things – one of those things I have seen in this journey is Kayleigh’s hair. To me, Kayleigh’s hair is far less important than her life. I love her no matter what – if pursuing a treatment that makes her lose her hair saves her life – sign me up. But that is not how Kayleigh feels. The only real breakdown she has had through this entire ordeal was when she realized that she might lose her hair. When that realization struck she was inconsolable. We sat in the bathroom floor together and prayed that Jesus would please help her keep her hair. Every time she woke up during the night we would continue the same prayer. About 3 weeks in to treatment hair started coming out in her hairbrush, more and more each day. I’m not talking about a few strands, I’m talking about clumps every day. But guess what? You won’t be able to tell. How is that possible? I don’t know. It is even a regular topic of discussion with her doctors. Not only can you not tell but the radiation site is not irritated, inflamed, red or itchy. God has shown up for Kayleigh. He has answered her prayer in a clear and tangible way.

It’s things like this that continue to solidify my faith. Brick by brick the Lord has enforced and then reinforced my walls. People will comment that I seem so peaceful, that’s because I am. It isn’t a front that is hiding secret fears, I don’t have any secret fears. I know down to the deepest part of my heart and soul that God is in control. I know that His plan far exceeds anything I could wish or imagine. Knowing that, believing that, trusting that, I have no cause to fear. And in the absence of fear, there is peace.

Something I have not shared on this public stage is that I believe God is going to grant us our requests. My prayers for Kayleigh have been that God will heal her this side of heaven. That her life will not be complete at 7 but that she will have at least 70+7. That she will go to school, go to prom, go to college, get married, have babies, and always love God first. My prayer is that she will be a walking, talking, miracle and that we can give all the glory to God. Given this diagnosis those are some seriously audacious prayers on my part and I know it. I ask God regularly to reassure me that He is really going to grant Kayleigh a full life and every time He responds. Sometimes it’s a verse or message from one of you. Sometimes it is a song on the radio with words that are pointed directly at my heart. Sometimes it’s scripture. But every time He answers.

I have had this post on my heart now for days. It’s a big, scary step of faith to lay such raw belief out for all to see. The human brain is quick to say “what if you’re wrong” to which I have to remind myself, this isn’t about me. It’s not about ME being right, it’s about me being faithful to say what God has placed on my heart to say. Knowing that I was going to write this tonight I decided to have my devotion before writing just for a little extra fortification. My scripture was Jeremiah 1:4-10. I will post all of the verses below, but 7b really hit home “And all that I command you, you shall speak”. If that wasn’t a direct order I don’t know what is.

I believe God is going to heal Kayleigh. On this side of heaven. I believe she is going to have a full life. I believe years from now I am going to have the opportunity to stand on a stage and share my testimony of this journey and have the joy of introducing Kayleigh. If your prayers don’t scare you they aren’t big enough… This one scares me, but my oh my does it fill me with such hope and expectation as well. I’m excited to see what God has in store for us next!

So, tonight I am going to rest well because I know my God is in control. I know he is holding my baby in the palm of His hand, and that He has her best interest at heart. I also know that I have been obedient. I am really looking forward to seeing what God has in store for us. It is going to be awesome!

Please continue to pray with us
1.) Complete healing this side of Heaven.
2.) Finish radiation with no bad side effects.
3.) Be able to lower the steroid dose more this week.
4.) For our friends Anna & Sawyer (and their families) both of which are battling their own, different brain tumors.

Until tomorrow,
‘Carrow 💜

Jeremiah 1:4-10
4 The Lord gave me this message: 5 “I knew you before I formed you in your mother’s womb. Before you were born I set you apart and appointed you as my prophet to the nations.” 6 “O Sovereign Lord,” I said, “I can’t speak for you! I’m too young!” 7 The Lord replied, “Don’t say, ‘I’m too young,’ for you must go wherever I send you and say whatever I tell you. 8 And don’t be afraid of the people, for I will be with you and will protect you. I, the Lord, have spoken!” 9 Then the Lord reached out and touched my mouth and said, “Look, I have put my words in your mouth! 10 Today I appoint you to stand up against nations and kingdoms. Some you must uproot and tear down, destroy and overthrow. Others you must build up and plant.”

Kayleigh’s miracle hair. Thank you Jesus for answering her prayers!image

Opening treasures – Thank you Aunt Kay!image

Dinner image

Our precious new friendsimage

Love these girls!image

June 27, 2016

Happy Monday!

Radiation treatment #26 of 30 is in the books. How can it be there are only 4 left? Time seems to be moving at record speed every day. My goodness how I would like for it to slow down!

Today Kayleigh’s treatment was much later than usual (5:00 pm). That allowed Tim and I to both run some errands and Kayleigh to meet her newest cousin. She was so excited. She’s trying to talk us into a younger sibling. Evidently she would like a younger brother. She did say an older brother would be nice if we could swing it. All we can do is laugh – sorry Sweet Pea, you’re going to have to just make do with cousins, more siblings are out!

Thank you for you prayers for safe travel. It was a nasty day to be on the road but most of the trip we were driving in between storms. We could literally see black on either side of us and the tiniest of strips of light in front of us. Such a clear answer to prayer!

We are now safely tucked in at Ronald McDonald House. Kayleigh spent the evening with Anna and her mom and sisters in the craft room tonight while I did laundry and cleaned our room. Thankfully Kayleigh is feeling great. To look at her you would have no clue anything was wrong. How thankful we are for these days of normalcy!

Please continue to pray with us for complete healing. We have such overwhelming peace that God has big plans for our precious girl. Plans for good, plans for a future. Plans for a future…

Pray those big prayers with us!

We love you all.
Until Tomorrow,
‘Carrow 💜








June 26, 2016

Happy Sunday!

No, you did not miss a post yesterday, we spent Saturday in the sweltering heat watching Grace play softball. By the time we were home I fell asleep tucking Kayleigh in and missed posting!

The good news is we have had a wonderful weekend. Saturday, Tim and I had some quality time with Grace and Tim’s parents were gracious enough to stay with Cole and Kayleigh so they did not have to endure the insane heat. That arrangement made everyone happy!

Today we rested and recuperated, visited with family and had friends we haven’t seen in forever over to swim. It was exceptionally normal and very much needed.

Tomorrow Kayleigh’s treatment is not until 5:00 pm so we are going to have a little extra time in the morning to run some errands. It still amazes me how God continues to orchestrate the smallest things like errand scheduling for us. I did not even realize I needed to be able to run errands Monday until this evening at 6:00. A situation that had potential to cause stress was already in line thanks to God’s plan.

As I see God care for us in the most minute details it continues to remind me that He cares for us. Not just about important things, but about everything. It reminds me that God wants to be a part of our lives in everything that we do. I find myself looking at situations differently. If I get caught in traffic and am delayed I don’t get stressed out, I wonder why I needed to be slowed down – am I missing a wreck? Is God protecting me from something? Is He orchestrating something bigger? Sometime I am able to see Him in things, like today’s scheduling and sometimes I don’t. But now, even if I don’t SEE what God is doing I don’t doubt that he is at work.

So, that is my challenge to all of you tonight – the next time something happens unexpectedly, don’t get worked up over it or worry, start looking to see what God is up to. He’s God, right? He is capable to do far more than we could ever imagine and His desire is to love, protect and grow us. Even in the bad situations God can turn them into good.

Isaiah 55:8-9
8 “My thoughts are nothing like your thoughts,” says the Lord. “And my ways are far beyond anything you could imagine. 9 For just as the heavens are higher than the earth, so my ways are higher than your ways and my thoughts higher than your thoughts.

Ephesians 3:20
Now all glory to God, who is able, through his mighty power at work within us, to accomplish infinitely more than we might ask or think.

No matter how scary things look on the outside, when you remember who is in control there is peace to be found in the storm.

Until tomorrow,
‘Carrow 💜

I did a terrible job taking pictures this weekend but I’ll try to do better next week!


June 24, 2016

It’s Friday! Radiation #25 of 30 is in the books and we are home sleeping in our own beds tonight, hallelujah!

It’s a tournament weekend which means our lives will be complete chaos and we are going to be exhausted m but that’s ok. It’s the kind of chaos we miss. It also means my posts may be shorter than usual 😄.

Prayer requests:
1.) Complete healing for Kayleigh this side of heaven.
2.) For bad side effects to continue to stay away and that Kayleigh will have no more headaches.
3.) For all 5 of us as we try to remember how to function as a family. Kayleigh is so accustom to having Tim & I both 24/7 that she struggles sharing us with Cole and Grace when we are home. Of course Cole and Grace are without us all week so they need time with us. Those dynamics are proving to be a little stressful. We would appreciate prayers for balance!

We love you all –
Until tomorrow,

P. S. – it’s been a crazy day and I have no Kayleigh pictures. I did however get a new nephew this morning so you all get my “super proud aunt” selfie tonight! I will try to do better tomorrow!