What a day!
Kayleigh was feeling much better his morning. She was able to get up, shower, get dressed and be ready to go. She is SO ready to be home. She is especially missing Grace and Cole.
Her neurosurgeon came in around lunch time to check her out one more time. We love that man. You can tell his priority is the children and that he loves what he does. He seems to very much enjoy Kayleigh’s spunk and his team loves her too. They keep asking if hey can just keep her. Kayleigh like them but she is quite adamant that they may not keep her!
We were finally ready to go and discharged by 2:00 this afternoon. We decided we wanted somewhere low key to rest tonight with good food. We wound up driving a little ways down the keys. Not too far, we need to be able to get back to be hospital if necessary but it is still beautiful.
Our biggest hurdle today was Kayleigh herself. She has been quiet and pensive since the second hospital visit. She is beginning to understand a bit about he severity of her condition. This afternoon it really bubbled over to the surface. From 4:00-10:00 tonight Kayleigh cried and cried. She had moments where she would calm down and then Satan would give her another bad thought and she would tailspin out again. She is worried about school, getting home, keeping our family together and dying. I cannot tel you how badly my heart hurts for her. I don’t have the answers that’s he is looking for because I don’t know what is going to happen. I just have sat here and rocked her and held her. Praying, praying and praying some more that God would grant her peace.
Finally, at 10:00 pm after I had prayed over Kayleigh again she quietly asked me – “Mommy, could we make sure I have Jesus in my heart?” Oh, such joy and sadness at the same time. Joy that she realized her need all on her own but sadness that this nasty disease was the catalyst. We sat on this hotel bed and I had the joy of leading my precious girl to a relationship with Jesus, and as always, Jesus is good. Kayleigh’s hysteria calmed immediately. The holy spirit eased her fears as I could not and she was finally able to sleep.
So tonight we would appreciate your prayers for peace and protection. Protection of Kayleigh’s heart and mind, that she will have a spirit of peace. Prayers that Tim and I will have the right words to always be truthful yet positive and encouraging, no matter the circumstance. Our prayer is that we will be able to continue to point Kayleigh to Jesus every day. That we can teach her to find peace in Him even during the storm. And finally prayers for safe travels home.
Even though today has been a hard day, God is good. We are so thankful that our hope is in Him and that Kayleigh has that precious hope now too. If for any reason you are reading this and you don’t have Jesus, that is and easy thing to fix. Salvation is a free gift. We cannot earn it, we just have to accept it.
“For this is how God loved the world: He gave his one and only Son, so that everyone who believes in him will not perish but have eternal life.
10 For it is by believing in your heart that you are made right with God, and it is by openly declaring your faith that you are saved. 11 As the Scriptures tell us, “Anyone who trusts in him will never be disgraced.” 12 Jew and Gentile are the same in this respect. They have the same Lord, who gives generously to all who call on him. 13 For “Everyone who calls on the name of the Lord will be saved.”
I pray to peace of the Lord will be with each of you.