Monthly Archive: September 2016

September 19, 2016

Greetings from Memphis! We are safely back at St. Jude. Kayleigh had a fairly busy schedule today but it went pretty well. The headaches stayed away nearly all day but did make an appearance tonight. She also had to take her chemo earlier today so that messed her stomach up too from about 3:00 pm on. Yet as always she has been a trooper.

She asked for steak for dinner tonight. Since meat is one of the few things she can eat a with out too much stomach trouble we quickly agreed. As we drove down town Tim saws Texas De Brazil and we decided to splurge and celebrate almost being done with the trial. For a kid that’s hungry all the time there isn’t a better restaurant.

After dinner we went on a carriage ride around down town. She’s been asking to do it since the beginning so she was thrilled to finally get to go. It was the perfect night for it too, not too hot!

The only down side to tonight is the headache really. I’m sure all the walking and excitement didn’t help but it certainly was good to see her happy 💜💜💜.

Tonight would you please join us in earnestly praying for tomorrow? We need the headaches to go away. I know it is from lowering the steroids but we need for her to even out so we can lower them again!! This is my verse for today. I am praying that I will continue to have a steadfast spirit!

Isaiah 26:3
You will keep in perfect peace all who trust in you, all whose thoughts are fixed on you!

Until tomorrow,


Being silly and singing. image

Look who we found! Love our Anna!image


Dinner utimage

Carriage rideimage

Who knew Elvis had duck feet?image

September 18, 2010

Your prayers are working – thank you Jesus!!! Today is day three of the steroid decrease where we usually start seeing negative side effects from the weaning. Guess what? No negative side effects today!!!!

This is a huge answer to prayer. We need just as much prayer to cover Kayleigh and her body again tomorrow and Tuesday. If we can get through those days unscathed then she will be ready for another decrease. So please, keep praying those big prayers!

Tomorrow our day starts at 12:30 with an EKG to check her heart (one of the meds she us taking can cause heart issues) and then she has lab draws again. Because of the lab draws we have started moving her chemo up to earlier in the day. Unfortunately, that makes things so much worse for Kayleigh. She is awake for the tummy ache part more and that stinks. But after tomorrow’s draws we should be able to move her dose closer to bed time. Please pray that her stomach tolerates the medicine well tomorrow and that she isn’t miserable!

It’s been wonderful to be at home but I am looking forward to going back to Memphis. My favorite thing this weekend was getting to go to church to worship and have my spirit refilled. How appropriate the sermon was about encouraging others through faith. I don’t know why God has put us on this path but I keep praying that our story will encourage people each day. These verses just confirmed in my spirit that indeed, trouble will come, we just have to keep the faith!

1 Thessalonians 3:2-3
2 and we sent Timothy to visit you. He is our brother and God’s co-worker in proclaiming the Good News of Christ. We sent him to strengthen you, to encourage you in your faith, 3 and to keep you from being shaken by the troubles you were going through. But you know that we are destined for such troubles.

Until Tomorrow,

September 17, 2016

It’s been a wonderful day to be low key and at home. Yes, I said home! We head back to Memphis again tomorrow for another week but we are so thankful that we were able to get away for the weekend and enjoy home, friends and Depot Days in our wonderful town.

All of our kids had been asking to go to Depot Days. It’s always so much fun but I wasn’t sure if we would be able to make it work. But as usual, God was good. I mean really, Depot Days isn’t all that important in the grand scheme of things but God made it happen. He even kept the rain mostly out of the way while we were there making the weather nice and breezy. Just one more time that God shows me how much He cares for us, even in the small things.

Kayleigh also had a pretty good day today. I hope in a few more days that maybe we will find a system that keeps the stomach pain away and gives us back a happy girl. We are so thankful for progress even if it is slow!

The next few days are going to be very important to our girl. For starters, we decreased the steroid yesterday which means tomorrow we start seeing the effects. Usually that means headaches will start showing up. Our prayer is for no headache and no bad side effects! The better she handles the decreases the quicker we will be able to get off these steroids and that should help her stomach too.

Also, this week Kayleigh has one more blood draw day on Monday but hopefully that will only be 2 draws. Then Wednesday she has another MRI. Would you please start praying now for good news? Since Kayleigh’s diagnosis each scan has had progressively less wonderful news (can you say gross understatement?). We know God is at work, and truly, what the scan says doesn’t really matter because God is in control and He has the plan. But it would be wonderful to have something positive to tell Kayleigh. I think positive news of any kind would do a great deal for her peace of mind and our as well of course.

I feel a bit like the posts over the past few weeks have been a little repetitive. We are caught in a loop of medicine, stomach pains, and more medicine. But then yesterday my devotion had a line that said “…if we drift in our devotion to God, the tragic events that unfold can leave us jaded…” and it just made me pause for a moment. When things are scary I am good to walk hip to hip with the Lord because I am counting on his strength. I know who He is and what He is capable of – there are NO limits when it comes to what He can do. But when things aren’t too bad it’s so easy to not walk quite as closely. It’s easy to kind of just float on through, because true devotion to God requires a commitment on my part.

Yet these are the times when I need to be fortifying myself for what is to come. Just because the devil isn’t on the offensive striking at us doesn’t mean he isn’t out there. As I’ve said before, he is crafty. If he is able to lull me into complacency then when he does spring an attack on me I won’t be prepared. He has a better chance to get under my skin and erode my foundations. I will be a sitting duck for him to push all my buttons. I’m guessing some of you are like me. So, if your life is rolling along pretty well or say maybe you just aren’t in the middle of an active storm – don’t get soft. Don’t get lazy. Keep taking time to spend with the Lord. Talk to Him. Make time to sit quietly and listen. Read His word. Prepare yourself for the unexpected so that when it comes you can smile knowing that God has everything under control and that He will “use everything for your good and His glory.”

Until tomorrow,

From Every Day In His Presence by Charles F. Stanleyimage

Tim with ALL the kids (ours and friends) he took them all to play so I could have time to shop and visit with the moms. Thank you baby for my retail therapy and 7 happy kids! image

Black Widows softball sporting their Kayleigh ribbons on their helmets. Thank you girls 💜💜💜image

Dinner out with just mommy, daddy & Kayleighimage

Some kind soul paid for our dinner. This is the thank you note Kayleigh wrote. To whoever you are, thank you!


September 16, 2016

Happy Friday! Welcome to another weekend. I know our family is certainly looking forward to the weekend.

Kayleigh Bug has had a pretty good day today. Her new stomach medicine is helping some and we decreased her steroid a little today. She still had stomach pain today but it wasn’t quite as bad. Hopefully we can get off the steroids and get the stomach completely under control soon! Please keep praying for the meds to work and for us to be able to lower the dose without bad side effects. I am a little worried about how her body will handle this reduction. It didn’t really like the last one so your prayers are greatly appreciated!

Today has also been a beautiful day for support. The band had purple Pom poems, the high school football program has a huge ad for Kayleigh, another local school had a big fundraiser for Kayleigh today, softball teams are still wearing her color or number, it’s just amazing. We are so humbled by the outpouring of love from every direction. I know God is using Kayleigh’s story to minister to many people, but He is also using the comments, posts, messages, and kind words from strangers to encourage us each day.

We continue to pray big, bold, prayers – knowing that God hears them and is more than capable of granting our greatest desires. Praying, claiming, believing, trusting – our God is so GOOD.

Mark 11:22-25
22 Then Jesus said to the disciples, “Have faith in God. 23 I tell you the truth, you can say to this mountain, ‘May you be lifted up and thrown into the sea,’ and it will happen. But you must really believe it will happen and have no doubt in your heart. 24 I tell you, you can pray for anything, and if you believe that you’ve received it, it will be yours. 25 But when you are praying, first forgive anyone you are holding a grudge against, so that your Father in heaven will forgive your sins, too.”

Until tomorrow,

One the wall at a local Chili’simage

His sweet girl donated all of her birthday money 💜image

Purple Pom Poms!image

In the football program!image

My beautiful cuff from one of the fund raisers💜image

8U KB’s Warriors Softball


Softbal helmet stickersimage

DHCA went gold for childhood cancer 💛💜image

September 15, 2016

Good evening everyone. I apologize for my oh so short post last night. I was exhausted and coherent words eluded me. It took until 2:00 am to just get those puny two paragraphs written. I’m still pretty tired tonight but in better shape than before!

Kayleigh has had an ok day today. We met with her quality of life team where we discussed her stomach issues a little more in depth. They gave us some suggestions that we passed on to our oncologist. I was able to spend a little more time with Kayleigh’s oncologist today discussing symptoms and ideas about how to help them. One of or biggest moves is to get her off the steroids. Since the steroids cause acid issues on their own, combining them with the chemo is a double whammy. If we can get off the steroids it should help some. Unfortunately, Kayleigh has been in them for so long her body has grown dependent, so coming off is very hard. We are going to decrease her dose again tomorrow – we would very much appreciate your prayers for it to go well. Generally she does well on days 1 & 2 of a decrease and then headaches start on day threes and can be very persistent.

Since getting her off the steroids is a slower process we need something to help now. Thankfully, Kayleigh’s Doctor had some medicine called in that is made to coat the stomach. Hopefully it will make day to day life better for her!

Thank you all for your love and support. We certainly need it!

Until tomorrow,

Removing her own IV… Again!image

prayers adtr the gamsimage

that is Kayleigh in the crack 🙂image