January 2, 2017
We have certainly enjoyed and welcomed a few days of rest from school, work, and the craziness that we all tend to add to Christmas in general. New Years seems to be a little more low key and even restful and real rest is what we all have needed since November. ‘Carrow has been able to take a leave from work since May and chose not to return until now being after the year. I returned to work after Thanksgiving but knew that she wanted and needed more time than I did. God’s timing was perfect and made a way for ‘Carrow to stay home as long as she needed. In that time at home my wife has been able to transform our home. She has redecorated two rooms that we entertain friends and family in and have plenty of space to sit and talk and space to occasionally send the kids to their own area . She has created beautiful reminders all over our house of Kayleigh from family pics to large Kayleigh prints over the fireplace. Not to make us sad but to always remember our wonderful memories and special time with our girl. So tonight when I was asked by a family member at dinner ” what was your favorite Christmas gift this year?” My answer was came to me quickly. My favorite gift was it the hard work that my wife spent countless hours on to make our home a special place for all of us. So as we continue to figure out this “new normal” please pray for ‘Carrow’s transition back to work. I know she will be fine and do great but, I also know what it was like for me to go back. Continue to pray for those kids still battling this disease. We continue to closely follow quite a few other DIPG families and share their stories when we can .