We made it to Friday! Thank you Jesus, the first week is in the books. Kayleigh is enrolled in the trial and she has run chemo treatments. Wednesday was her first dose (just one of the chemos), Thursday was no chemo, just check blood work, and today was both chemos for the first time. I am please to report that Kayleigh took both drugs today and did not seem to have any side effects. If that isn’t a direct answer to prayer I don’t know what is!
Unfortunately, Kayleigh has developed a cough. It could be sinus drainage but it could also be because she has lost her gag reflex. As the tumor presses on things, swallowing becomes a big concern. With no gag reflex it is harder for the body to steer thin liquids to the correct place. If liquids are not directed properly then they can “go down the wrong way”. We have noticed some episodes of this with Kayleigh, but usually just when she is drinking too fast. That being said, we are hopeful that these chemos will decrease the tumor which would in turn decrease the pressure.
So, keep praying!! All the prayers from our faithful friends are making a difference.
1.) Complete healing this side of heaven.
2.) No side effects from the chemo or other drugs.
3.) To be able to begin weaning steroids again next week.
4.) For the tumor to shrink helping symptoms receded.
5.) Balance to get better.
6.) Coughing to go away.
7.) No headaches!
I know we are on this journey for a reason. As we continue to walk God’s path for our lives we are just so incredibly thankful for how God continues to minister to us. With this terrible disease it would be so easy to focus on the bad things, the scary things, the statistics. But truly, what would that do for us? What it would do is rob us of the joy we have in today. We are well aware of the mountain in front of us – but we are more aware of the Almighty God that is on our side.
One of my favorite songs right now is Hillary Scott’s “Still”. It reminds me to just rest in Him, because He is already at work in things I cannot see or imagine. I don’t have to see what God is doing. I don’t have to understand His plan. I don’t have to have the answers. I just have to choose to be still and allow Him to be in control. I have to choose to let go of the reins. Choose… It is so simple and yet so difficult. If ever I write a book it’s going to be on choices. Every day we wake up and we have new choices to make. So who are you going to serve today? It’s your choice – no matter your circumstance – you can choose to look to Jesus. You can choose love, hope and joy. That is how we are able to walk this path!
15 But if you refuse to serve the Lord, then choose today whom you will serve. Would you prefer the gods your ancestors served beyond the Euphrates? Or will it be the gods of the Amorites in whose land you now live? But as for me and my family, we will serve the Lord.”
Hebrews 10: 35-36
35 So do not throw away this confident trust in the Lord. Remember the great reward it brings you! 36 Patient endurance is what you need now, so that you will continue to do God’s will. Then you will receive all that he has promised.