November 2, 2016

Hello friends – I am writing you tonight reporting little change. Kayleigh remains in nearly the same condition as yesterday. And while that may not seem like a good thing, I am quite thankful that I am not reporting any more decline.

Kayleigh slept very well last night and quite late this morning. She would make a lazy teenager proud! When she did wake she was hungry and snacked nearly all day. Mostly jello and applesauce but she did throw in some veggie straws a steak. We used a thickener in her drink which has helped her sputtering greatly. All things considered, it was a good day.

Since Kayleigh’s favorite color is purple we decided to buy purple Christmas lights to decorate the outside of the house. And since we already have our tree up at Kayleigh’s request, Tim decided to go ahead and start putting her exterior lights up too. I rarely get even a moment to leave Kayleigh’s side. She doesn’t even like it when I take a bathroom break, but tonight I snuck out so I could check out Tim’s handiwork. It looked great, but what else do I see when I go outside? I see purple lights up and down the street. Our neighbors have changed out their light bulbs and used purple spotlights to make our street a “purple out.” It’s wonderful and it made me smile. I hope once all of our lights are up Kayleigh might feel up to daddy carrying her outside to see them first hand.

Thank you for your prayers for Grace and Cole as well. Grace is sounding better after the antibiotics and cough medicine. Both kids were excited to help Tim with the lights.

Thank you for your consistent prayers. Tonight as you pray take a little time to marvel at the goodness of our Lord. Take time to be thankful for His infinite blessings. Even when things seem the darkest you can still find reasons to rejoice. And when you CHOOSE to rejoice in the storm – everything changes. I pray each one of you will choose well today. God is good, all the time – I promise.

Psalm 100
1 Shout with joy to the Lord, all the earth! 2 Worship the Lord with gladness. Come before him, singing with joy. 3 Acknowledge that the Lord is God! He made us, and we are his. We are his people, the sheep of his pasture. 4 Enter his gates with thanksgiving; go into his courts with praise. Give thanks to him and praise his name. 5 For the Lord is good. His unfailing love continues forever, and his faithfulness continues to each generation.

Until tomorrow,
‘Carrow💜

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Comments (4)

  1. Yadira Roesener

    The Lord appeared to him from afar, saying, “I have love you with an everlasting love; therefore I have drawn you with lovingkindness.”
    Jeremiah 31:3

    We continue to pray for your precious family.
    Yadira Roesener

    Reply
  2. Kristie Smith

    Prayers are with you all. Such a sweet sweet girl!

    Reply
  3. DONNA F GREEN

    I know your family is fearful for every precious moment you have with KayLeigh,,, I am sending prayers for Kayleigh and your family. Be blessed.

    Reply
  4. Debbie

    Your faith does not go un-noticed. Today was the first time I came to know of Kayleigh. I added my prayers to the growing list of warriors praying for all of you. As the days and weeks turn into months and each day is another precious gift, may you continue to find that amazing peacefulness that can only come from the relationship we have with our triune God.
    May his grace envelope you, his love sustain you and give you the persevering strength you need.
    God bless you each and every one.

    Reply

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