September 25, 2016

Good evening, friends –

Today is day 3 of the next steroid wean. Kayleigh started the day off very bumpy. She had a headache accompanied by nausea – a combination she hasn’t had since the shunt was revised. Thankfully, it didn’t last very long and she went on to have an ok day, but man, that particular combination always makes my anxiety creep up just a little.

Speaking of anxiety, Kayleigh’s is still very high. She is very quiet and pensive these days. She has moments where her spunky personality breaks through but those moments are further apart than normal. My continued prayer is that as she settles in to a normal routine her anxiety will lessen and go away.

Her stomach is still a constant problem hurting most of the day. She is also struggling with fatigue and increased leg and foot pain if she walks for any length of time. So many things that are just off kilter and just need to be brought back on track. The problem is I don’t know how to get them back on the track! All I know to do is to continue to pray. Pray for God’s guidance on how to help treat each symptom, and continue to believe that He is in control and His plan is perfect.

We would also appreciate you prayers for the rest of our family as we transition back to our new normal. Tim will be at work, Grace & Cole will be back at school. Kayleigh and I are taking one more week to try to tippy toe back into life. It is my hope that she will be able to at least go to school for a little bit this week, and that it will not cause additional anxiety or fear.

I keep finding myself returning to the Old Testament, reading God’s promises. No matter the situation, God promises to be there. Our job is to keep our eyes on him and allow Him to take care of all the details. Thank you Jesus, for giving your life, that this poor, broken sinner can be made right. That I can speak to the Lord or Lords. The peace that comes from knowing who is in control cannot be described.

Joshua 1:9
This is my command—be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go.”

Psalm 34:4
I prayed to the Lord, and he answered me. He freed me from all my fears.

Psalm 34:6
In my desperation I prayed, and the Lord listened; he saved me from all my troubles.

Isaiah 43:2-3
When you go through deep waters, I will be with you. When you go through rivers of difficulty, you will not drown. When you walk through the fire of oppression, you will not be burned up; the flames will not consume you. 3 For I am the Lord, your God, the Holy One of Israel, your Savior. I gave Egypt as a ransom for your freedom; I gave Ethiopia and Seba in your place.

We so much appreciate your continued prayers on our behalf. Much love to you all!

Until tomorrow,

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