Monthly Archive: May 2016

Thank you Lord for another day!

As you can tell from my earlier posts Kayleigh was able to have her radiation consult today! We are so thankful that her doctors took action to get treatment moving quickly. Today’s visit was to have her face molded for her radiation mask which will hold her head perfectly still during treatment and to have the CT scan which allows the doctor to precisely pinpoint the correct dosage and location for the radiation. This was the first visit that Kayleigh had to do without either of us in the room with her. She handled it like a pro, charming the staff all the while. Tomorrow we meet with her neuro oncologist to finalize plans and her first radiation treatment should be Monday.

Our prayer requests for Kayleigh are many
1.) for complete healing
2.) for radiation to help the symptoms
3.) for the radiation to not cause bad side effects
4.) for a long, full, happy life

This path is not an easy one. We love our precious girl so very much. We long for healing and the restoring of her health. We thank all of you for praying with us – that we will see a miracle! We also pray Kayleigh’s story will reach many with the love of Jesus and fill people with hope. We rejoice in the Lord always, even when we cannot see what is around the next bend. We know God is in control!

Love,
‘Carrow 💜

Kayleigh is in radiology now. We met with the radiologist and he wants to get started as soon as possible. She is having her mask made now and will be having a CT scan shortly to decide the radiation dosage. Please continue to cover her in prayers. Prayers for peace for all of us. Prayers for a scan that is better than expected. Prayers for God to show up and do amazing things. Prayers for any way God directs you to pray.

Thank you for standing with us. Our faith in Jesus is our anchor and all of your prayers are keeping us steady. God is good, all the time.

Love,
‘Carrow 💜

Quick update: Radiation consult that was pushed out to Thursday has been moved back up to today! I don’t know what this visit entails but would appreciate your prayers at 1:00 central time today!

I will update more later today
💜💜💜

A better day!

Yesterday was a rough one. Kayleigh’s headache just wouldn’t resolve itself. It made her sick to her stomach and generally awful feeling. Thankfully we were able to go straight to the hospital when we arrived at 9 pm and did not have to wait long for the doctor. Her oncologist prescribed pretty strong steroids for her to help get the symptoms in check while we finalize her care plans. We also found out that her stomach does NOT tolerate liquid steroids well. Those came right back up as soon as they went down 😳. Even through all of that she still had her sweet but sarcastic sense of humor. She told the doctor that those things were NASTY and made her puke so hard she puked out her nose! Those of you that know her can picture the full bodied attitude she said that with!

Thankfully, the steroids worked! She slept great and this morning she woke with no headache and no vomiting. Even her eye and facial features looked better. On the flip side of that she is talking 90 miles and hour, telling everyone exactly what she thinks (even more so than normal), and eating like a linebacker! We’re also thankful she likes fruit if she’s going to be eating non-stop!

We had expected to have our radiology consult today but her physician’s wife decided today was the day to have a baby! It has been rescheduled for Thursday and her oncologist seems to be fine with that as long as the steroids keep the symptoms in check. We know that God works in all kinds of ways so I’m certain that a baby rerouting our plans and bumping our consult out a couple of days has happened for a reason. For one, it gives us more days to cover our sweet girl in prayer! Please continue to stand with us. Our prayers are first for complete, miraculous healing! Second, if that request is not granted, we are praying for God’s plan to be made perfectly clear to Kayleigh’s doctors and that we will be able to start swiftly. And finally, we pray that we are able to encourage others we come in contact with both in person and via social media. It’s our prayer that others will read our story and understand that there is no way we could have hope in this situation except through Jesus.

Now we are off to a pool because a certain little seven year old has convinced us that it really isn’t bed time.

Love to you all,
‘Carrow 💜

P. S. – I think you might be able to see a little of the spunk in these. It was face painting and slurpee day here. And then we had Benihana!

What a wonderful day!

Today was Kayleigh’s last day of first grade. Her school, Crestline Elementary, held a Relay for Life walk in her honor and it was fantastic. So many friends and family came out to support her and make her feel special!

We are now on the road back to Memphis. Unfortunately, her symptoms are escalating. The headaches are more persistent and quite severe in some cases. I emailed her oncologist this afternoon and he was great to reply quickly. We are already scheduled to stop by the hospital tonight to see the on call doctor. They will probably give her some steroids that will hopefully help the symptoms and give her some relief.

Please keep praying! Prayers for healing and relief from the symptoms. Thank you for standing with us. God is good, all the time! No matter your situation – never give up, never lose hope. Even when God says “no” to your prayers, don’t lose faith. God’s plan is perfect and will be completed in His time and in His way. Hold tight to Jesus, there is no other way.

Love to you all,

‘Carrow 💜