Happy Anniversary to my other half! It seems this year our theme for big events is to mark it with a large Kayleigh life event. On Kayleigh’s 7th birthday we received her DIPG diagnosis. Now today on our 14th wedding anniversary Kayleigh started chemo. All I can say about that is I can at least remember the important dates!
I am so happy to report that Kayleigh had a wonderful day! No headaches, and no side effects from the medicine either! She took that big pill like a boss at 9:11 this morning and didn’t slow down at all. We had multiple blood draws all day long. Those were a little touchy, the IV would flush fine but when the nurses tries to draw back to actually take blood it just didn’t want to work. Thankfully, every time we prayed over that line and every time the nurse would get it. God is just so good!
Tomorrow she does not get chemo, just another blood draw to see how things are. Then, as long as all is well, she will take both chemo drugs daily beginning on Friday to continue for as long as they work. Please Jesus, let these drugs work! We are asking for Him to grant us exceeding abundantly more than we can ask on this point. We are asking for a God sized miracle!
In between her last blood draws Kayleigh was able to catch up with Anna. It makes her so happy to have a friend here! A friend that get just how crappy all of this is but knows that sometimes you just have to power through. I’ve got to tell you, these kids at St. Jude are amazing. They are fighters to the core. Strong doesn’t even begin to describe them.
So tonight our requests are
1.) Complete healing this side of heaven
2.) No headaches and no side effects from the drugs.
3.) For her breathing to continue to be deep and that her body will process the CO2 well.
4.) For God to just keep on showing up in the everyday things.
Tonight’s verse is for my wonderful husband. I am so thankful to have him as my steady partner in all of this. He is about as opposite from me as they come – which makes him a perfect fit. God help him, he has the job of balancing out all my crazy. I love you Tim McClendon – I wouldn’t want to be on this path with anyone but you.
2 Corinthians 6:14
Do not be unequally yoked with unbelievers. For what partnership has righteousness with lawlessness? Or what fellowship has light with darkness?
Until tomorrow,
‘Carrow💜
