Thank you friends for your continued prayers on our behalf.
Today has been better than yesterday, thank you Jesus, but there has still been a great deal of discomfort. We met with the doctor heading up Kayleigh’s trail this morning. Evidently, this is a very normal side effect for this medicine. We even found out that other doctors that have been using this drug prescribe Imodium along with the chemo so at the first sign of an issue it can be kept in check. That information would have been good to know, but since Kayleigh is one of the first children on the trial, and how to handle the situation wasn’t really written into the protocol, our medical team didn’t know exactly what to expect. It also means that since she had such a difficult time of it that they needed to decrease the dose of one of the meds. It is our prayer that this dose will be strong enough to do the job but low enough to allow her body to start balancing itself.
At the risk of sharing entirely too much information, or prayer tonight is for Kayleigh’s bowels to start moving correctly again, on their own. Every time she eats it triggers intense pain and discomfort because it isn’t working through her system properly. Please pray that her system will start moving gently, that the lower dose medicine will cause less discomfort and that her body will settle into its new normal. Please pray protection over her stomach, and entire digestive system, that the medicine will not cause any problems but will shrink this tumor!
Aside from this hiccup (albeit a kind of nasty hiccup) Kayleigh is doing well. Her blood pressure and heart rate both came down which was good. Her CO2 levels went up a little so she is no longer “critically low,” and is just “low.” We are praying for it to be in the normal range by next week!
It would be so easy to just look at the bad but truly, there is more good than bad. As I re-read the story of Abraham and Isaac tonight my heart was drawn to verse 14
Genesis 22:14
14 Abraham named the place Yahweh-Yireh (which means “the Lord will provide”). To this day, people still use that name as a proverb: “On the mountain of the Lord it will be provided.”
Yahweh-Yireh… Jehovah-Jireh… The Lord Will Provide… This is who my God is. He is the one who will provide. I am learning that God’s provision often does not look anything like I think it should, and that’s a good thing. I am so short sighted. Yet He sees all time, beginning, middle and end. So, I will take comfort in Him and I will rest in the arms of Yahweh-Yireh, because He cares for me.
1 Peter 5:7
Give all your worries and cares to God, for he cares about you.
Psalm 55:22
Give your burdens to the Lord, and he will take care of you. He will not permit the godly to slip and fall.
Until tomorrow,
‘Carrow💜
Playing in the goody box that arrived today!
Meet uave such wonderful friends!