Hopefully we are tucked in for the night! Kayleigh’s scan and symptoms point to increased cranial pressure due to fluid build up because of enlarged ventricles… All of that makes it sound like I know more than I do. Basically, fluid isn’t draining properly so her body needs some help. The doctors here, as well as our St. Jude team, all say it could be inflammation from the radiation. Honestly, we don’t know. What we do know is that surgical intervention can make life better so that is the route we are going to go.
Tim and I both have a spirit of peace. We are impressed with the entire staff here. They have been fantastic. They tell us the surgery itself should take about an hour. Of course we have anesthesia before and recovery after but still, it should be a half day affair. As long as there are no emergencies tonight Kayleigh will probably their first patient tomorrow morning (around 7:00 am EST). They will be placing a shunt in her head under the skin that drains into her stomach. Considering what they are doing, the procedure is actually minimally invasive. Once it is in and they observe her for a day or two we should be able to head north. Where we go after this will be determined by how she does.
Please pray for the doctors to have sure, sturdy hands guided by God himself. Pray for supernatural wisdom on their parts as well. Pray for peace for Tim & I as we wait. As always, pray for complete and miraculous healing!
We cannot begin to thank all of the amazing people who have helped us in this journey, from the ambulance, nurses, doctors and our liaison Lee in Jamaica, to the REVA medflight team, to Miami children’s, to customs & boarder patrol – everyone has been kind, attentive and amazingly helpful. Thank you all for helping us take care of our precious girl!
Until tomorrow,
‘Carrow💜