Whew… What a crazy day!
Kayleigh and I began our day by going to the St. Jude affiliate in Huntsville. I had thought it would be a quick trip but I miscalculated. We were there almost 3 hours, but thankfully, everything went well and Kayleigh had an overall good report.
We are still battling headaches most evenings. They seem to be worse the more active she has been. Of course, most days are very active days and I don’t foresee that slowing down in the near future. So my prayer is that we will find the right combination of steroids and patience to keep Kayleigh feeling good. I so much would like to get her off of the steroids completely but more than that I want her feeling good!
On a fun note, this evening the kids and I were able to pull off the biggest surprise in the history of our little family. With the help of some amazing friends we managed to get Tim’s jeep to the body shop to get fixed up and painted. It had been my plan to make that happen for his birthday this year but the DIPG diagnosis put a kibosh on that! I was shocked the kids were able to keep it a secret!
As I finally lay myself down here in the wee hours of the morning I cannot help but be completely overwhelmed by our amazing friends, family and community. Everywhere we go people stop me to let me know they are praying for Kayleigh and our family. Anonymous people have paid our check at dinner, complete strangers have donated money to help with expenses, friends have brought us costumes and luggage so we can put together the most magical trip possible.
So while it would be easy to look at today and just see Kayleigh’s headaches – and worry, I am choosing to focus my eyes on bring thankful. Thankful for all the things God has done for us. Thankful for each moment. Thankful for an amazing vacation opportunity. Yes, today is a good day. Did you know when you get busy thanking God for everything that it is nearly impossible to worry? When my eyes are on Him, walking on the water is simple. Eyes toward heaven and one foot in front of the other.
I pray that each of you will take time to rejoice in the Lord, wherever you may be. Even if you’re in the eye of the storm, there are still things to be tankful for, I promise. And God is good to care for his children that are obedient to his teachings.
Philippians 4:6-7
6 Don’t worry about anything; instead, pray about everything. Tell God what you need, and thank him for all he has done. 7 Then you will experience God’s peace, which exceeds anything we can understand. His peace will guard your hearts and minds as you live in Christ Jesus.
Proverbs 3:5-6
5 Trust in the Lord with all your heart; do not depend on your own understanding. 6 Seek his will in all you do, and he will show you which path to take.
Until tomorrow,
‘Carrow 💜
