Well, today has been eventful!
We started off the day a little later than we have been which means we got a little more sleep – that’s a big praise for this mommy who’s been cruising on 5 hours or less each night. Woo hoo! Kayleigh slept well and felt good this morning but after radiation she started having a headache. We hoped that it was just from stopping the steroids and that it would ease up. The headache was fairly mild and she didn’t have any nausea so we went on to her other appointments. She did physical therapy, occupational therapy, and child life all with this headache. I called her clinic and was given the OK to give her Tylenol to help the symptoms to see if we could stay off the steroids. We filled her Tylenol Rx at the clinic and headed back to Tri Delta.
Meanwhile… we were told last Friday that we were going to be moved to Ronald McDonald House which isn’t really what we wanted. By moving to RMH we would no longer be on campus, we lose our cafeteria meal card and are no longer eligible for mileage reimbursement for the trips we make back and forth. On the plus side we can leave our things at RMH on the weekend instead of packing everything up each week. Monday when I spoke with housing I left feeling like they were going to allow us to stay in Tri Delta but was told to come back this morning to confirm. When I went back this morning I found out we were indeed moving to RMH. So, while I was taking Kayleigh to her appointments Tim and Cole were back at the room packing up our things and loading the car after just unloading them the night before. I’m sure you can guess what kind of mood everyone was in…
By the time Kayleigh and I met Tim and Cole at the car she was beginning to cry because her head was hurting so badly. It progressed rapidly to the point of vomiting within minute. Usually vomiting helps her feel better quickly but today she didn’t bounce back like usual. To compound the problem we were in between rooms with no where to go. Checked out of Tri Delta and had 2 hours before we could check in at RMH. So we buckled her up with her blanket and pillow and drove around Memphis while she slept. That is when I sent the mid day prayer request. My goodness how thankful we are for all of you! Thousands of her prayer warriors were on the move in moments. Moments! God is amazing.
While we drove I called her clinic to let the doctor know what was going on. They decided to put her back on the 1mg steroid dose for now and to wean her down slower. Evidently while 1mg doesn’t sound like much it’s a little high to drop off of cold turkey. So now the prayer is that we will be able to keep coming down and get off completely in the near future. Kayleigh slept for about 20 minutes and woke up completely back to normal and hungry. That was a huge thank you Jesus!
We are now unloaded at RMH. Diner was brought in by a local restaurant so it was nice not to have to get out. The facility is quite nice so while we weren’t thrilled about being moved here I am quite sure everything will work out fine. I’m also certain the Lord has a reason for us being here. Perhaps there are people here we need to meet, or perhaps it’s something else all together, I don’t know. What I do know is God always has a reason even when I can’t see it. So we are going to just wait and see what He has in store for us.
And while we wait, tonight we are enjoying some family time in the awesome craft room just down the hall from us. Check out Kayleigh’s awesome family tree. Some of the leaves are our finger prints – it was all her idea. We are looking forward to adding Grace’s finger print tomorrow!
Isaiah 40:31
But those who trust in the Lord will find new strength. They will soar high on wings like eagles. They will run and not grow weary. They will walk and not faint.
Jeremiah 29:11
For I know the plans I have for you,” says the Lord. “They are plans for good and not for disaster, to give you a future and a hope.
Romans 12:12
Rejoice in our confident hope. Be patient in trouble, and keep on praying.
Until tomorrow,
‘Carrow 💜
It was pet therapy day!
Welcome to Ronald McDonald House
Planning her family tree
The nearly finished project 
I know you know that we have kept in touch but just have not said anything. Sometimes being quite and praying is all you need. Especially, when you have so many friends. Just know that GranDa and Granny love you and are praying what you want us to pray for as long as it is in God’s will. I love you Carrow,Tim,Kayleigh, Grace and Cole more than I can put into words and GrandDa does too. Always remember that.