Happy Tuesday night everyone. I am very happy to report that operation “Rest & Do As Little As Possible” is well under way this week. Even though we are shooting to keep the days low key Kayleigh still keeps us on our toes. Thankfully she is still feeling good and is staying active!
Today Kayleigh had her 22nd radiation treatment – only 8 more to go! She also had occupational & physical therapies as well along with a visit from Child Life but we were still done before lunch. She spent the afternoon napping and playing her iPad while Tim and I took care of work and housekeeping things. We enjoyed dinner and ice cream with friends tonight and made a quick run by Target. It was so incredibly normal.
It is quite amazing how our priorities have shifted in this short time frame. And not just priorities, but the things that bring us joy have shifted as well. Watching Kayleigh walk, talk and laugh. Watching her get to play with friends. We no longer are rushing from one thing to the next, making plans for what we need to do next. Now we are enjoying each moment and living in the now. Currently, our idea of planning is about 5 hours ahead – max – and the Lord is teaching me that is ok
Tonight’s reminder to not worry and keep the faith…
Luke 12:27-32
27 “Look at the lilies and how they grow. They don’t work or make their clothing, yet Solomon in all his glory was not dressed as beautifully as they are. 28 And if God cares so wonderfully for flowers that are here today and thrown into the fire tomorrow, he will certainly care for you. Why do you have so little faith? 29 “And don’t be concerned about what to eat and what to drink. Don’t worry about such things. 30 These things dominate the thoughts of unbelievers all over the world, but your Father already knows your needs. 31 Seek the Kingdom of God above all else, and he will give you everything you need. 32 “So don’t be afraid, little flock. For it gives your Father great happiness to give you the Kingdom.
Isn’t it awesome to read that God already knows our needs? Not only does He know them, but He wants to meet them. Not just meet them, verse 32 says He wants to give us the Kingdom. Wow. When we stop and think about just how big God is you realize there really is no request too big for him. So keep on praying big prayers. I know I am!
Prayer requests:
1.) Complete healing this side of heaven.
2.) For our phase 2 plans to start coming into focus. Clear direction!
3.) For phase 2 plan to not even be needed – wouldn’t that be awesome??
4.) For us to be able to successfully lower the steroids.
5.) Kayleigh’s new friends.
We are all making precious friends here. I am starting to understand what people mean when they say we are now a part of the St. Jude family. Everyone here is battling for their child, everyone here can empathize with one another. There is camaraderie between complete strangers because you just get it. Every new friend we make is added to our prayer list.
We love you all –
Until tomorrow,
‘Carrow💜
Just a reminder for myself
She is on a mission – no time for pictures!
Unless you stop at Starbucks…
Yep, then you even get a smile if you bribe with a vanilla bean frappe
We matched! Thats one of those special little things.