This morning we started the rounds st 7:30. They took labs and Kayleigh did great. We met with the nurse, nurse practitioner, and neuro oncologist. Kayleigh was checked out thoroughly and then we were given the initial report based on the MRI… It was not what we wanted to hear.
It appears that this is a fast growing high level tumor and it is intricately wrapped around nearly all of her brain stem. Because of the location it is inoperable. Other options are out there but none of them are proven. Radiation is our best bet to shrink it but that won’t get rid of it. They say chemo after that to try to get rid of it. So far they have not have much success treating these but this is a cutting edge research hospital so it’s the place to be. Much of the treatment after radiation will be experimental. So please pray that their every step will be perfectly guided.
Tomorrow morning at 8:00 am Kayleigh goes in for a high definition MRI. We are praying for a miracle. For a clear scan. And if the Lord choose not to grant that request then we pray for a very clear treatment plan, one that will grant our baby a long full life.
So friends, light up your prayer chains. Tell your friends, share her story, cover our baby with prayer.
This picture is from her first round of lab draws
I did not know you had a website Carrow. I read your daily prayer and thoughts from Mrs. Strickland, my 8th grade English teacher. I am now almost 65…I learn from you that excepting Gods will is still the best and hardest thing we are called to do. It is a way of living out your time of sorrow and giving it purpose. I have had a very hard childhood and life but i see all of it as my education from God. I am so sorry for you and your family . Someday it will all make sense to you Carrow. Your writings are beautiful. I love you as my Christian Sister who is suffering and trying to find purpose. in this journey of pain God Bless all of you…Your angel is with you as you write. I can tell. In truth i could describe.