Happy Tuesday!
Thank you Jesus for another good day. Can I just tell you how thankful I am that I have been able to write that same sentence for so many days in a row? Thank you Jesus for another good day… before Kayleigh’s diagnosis I didn’t thank God for every day, at least not like I do now. Now I am thanking him with a depth of gratitude I didn’t know existed before. That is another of the many blessing God has granted us on this journey. I’m thankful for every trip to Walmart, for every time Kayleigh tries to convince us ice cream is absolutely necessary (even if she did just eat a 12 oz steak, salad, cinnamon apples, peanuts & 2 rolls all by herself), for each night she asks if I will sleep with her (and Tim doesn’t complain), for every time she interrupts me just to say she loves me. I’m learning to live in this place where I am thankful for each minute, each breath, each everything.
So yes, today was a good day. Kayleigh’s treatment went well. Her nurses love her and it is so fun to watch her interact with them. We had our weekly visit with her radiation oncologist. He was pleased with how well she is doing and said the steroids could come down some more! We will be talking with her neuro-oncologist on Thursday about how much to lower the dose. Praise the Lord!
We have made some friends here. Their daughter is battling a different brain tumor. Her treatment is about 6 days behind Kayleigh’s. Today I got to watch Kayleigh try to ease her new friends fear of what radiation would be like. While it was a brief exchange I was so proud of her. You can add our sweet friend to your prayer lists as well. For now you can just call her Kayleigh’s friend “A” (I won’t publish her name without permission).
After treatment today Kayleigh was up for some walking! We visited the Danny & Rose Marie Thomas Memorial Gardens here on campus. That wore her out a bit, especially since she had physical therapy this morning (which she did great with, balance is getting better!!!) so we took a nap this afternoon so Daddy could take us out to dinner and shopping.
It was a good day 💜
Prayer requests:
1.) Complete healing – this side of heaven!
2.) Kayleigh to continue tolerating radiation well with no bad side effects.
3.) Kayleigh’s friend “A” who is starting treatment possibly tomorrow.
Until tomorrow,
‘Carrow 💜
