Today is the 6 month anniversary of Kayleigh’s diagnosis and time is growing shorter by the minute. Kayleigh is sleeping nearly all the time, only waking if she is in distress. Her O2 level is dropping more and we have started her on oxygen to help keep her comfortable. We don’t know the time God will call her home but we know it is coming closer.
So tonight we are holding our girl in the quiet of our home. I’m so thankful for our wonderful hospice nurses. Becki is staying with us just to make sure we can keep Kayleigh comfortable. Even in this state she’s a fighter. Her heart beats strong, she still says mom, she reaches for my hand and holds on tight.
Reflecting on these past 6 months that could easily be the worst of our lives, I cannot help but be humbled by all of our blessings. God has been SO good. He has guided our every step, given us an amazing support system, gathered an army of prayer warriors, made Tim and I better parents, strengthened our marriage… the list goes on and on.
So yes, our hearts are heavy. We love this child so very much. But we know God loves her even more and that His plan for her is perfect.
Tonight as you cover our family in prayer would you please pray for Kayleigh to be comfortable? For her heart to be peaceful and her transition from our arms to Jesus’ to be gentle. Pray for Tim and I as we weather grief every parent fears and no one wants to face. Pray that we will be good parents to Grace and Cole helping them to not just survive but flourish in this storm. And finally, pray God’s protection over Grace and Cole in every matter.
2 Corinthians 5:6-8
6 So we are always confident, even though we know that as long as we live in these bodies we are not at home with the Lord. 7 For we live by believing and not by seeing. 8 Yes, we are fully confident, and we would rather be away from these earthly bodies, for then we will be at home with the Lord.
Until tomorrow,
‘Carrow
Thank you to my sweet friend Heather Mitchell for taking this phone snapshot and making it a treasure.
Just us girls
Daddy photo bomb