Good evening everyone. I apologize for my oh so short post last night. I was exhausted and coherent words eluded me. It took until 2:00 am to just get those puny two paragraphs written. I’m still pretty tired tonight but in better shape than before!
Kayleigh has had an ok day today. We met with her quality of life team where we discussed her stomach issues a little more in depth. They gave us some suggestions that we passed on to our oncologist. I was able to spend a little more time with Kayleigh’s oncologist today discussing symptoms and ideas about how to help them. One of or biggest moves is to get her off the steroids. Since the steroids cause acid issues on their own, combining them with the chemo is a double whammy. If we can get off the steroids it should help some. Unfortunately, Kayleigh has been in them for so long her body has grown dependent, so coming off is very hard. We are going to decrease her dose again tomorrow – we would very much appreciate your prayers for it to go well. Generally she does well on days 1 & 2 of a decrease and then headaches start on day threes and can be very persistent.
Since getting her off the steroids is a slower process we need something to help now. Thankfully, Kayleigh’s Doctor had some medicine called in that is made to coat the stomach. Hopefully it will make day to day life better for her!
Thank you all for your love and support. We certainly need it!
Until tomorrow,
‘Carrow💜
Removing her own IV… Again!
prayers adtr the gams
that is Kayleigh in the crack 🙂
Hello. This is Allie Maples. I am praying hard for Kayleigh.
I hope she gets well soon!