Hello everyone! It’s been a busy day here in Memphis. As we prepare to head home we are packing our days full of fun things and precious memories.
Kayleigh only had PT this morning so we had all day to play. We really should have been packing – but hey, there were way more fun things to do, so we did! Our sweet friend Anna has been in patient since Friday receiving her second round of chemo. Today, they moved all the patients from the main hospital to the new patient floors so we went to visit and check things out. And man-oh-man was it awesome!! St. Jude has made everything as kid friendly and interactive as possible. The rooms are big and even have attached rooms for the parents! The rooms have mood lighting and awesome pictures – it is incredible. We spent most of our time in the imagination room which had a screen that went up the wall and onto the ceiling and had interactive games the kids could play.
Both Kayleigh and Anna battled stomach pain and fatigue all day but neither of them wanted to stop playing or just kind of being together. There is something to be said for having a friend that just “gets it” and even though they don’t really express that in words you can just see how easy they are with one another. Tim and I are so thankful for Mike and Jodi for the same reason. We all understand what we are up against and we all know there is nothing we can do. All we can do is watch our children fight, pray, hope, and believe in miracles. You might think that would make for a sad friendship but you would be wrong. It makes for a fantastically easy friendship. One where if we all want to order dessert for dinner we will because we understand just how precious time is. Or stay out late on a week night. It’s just one more of those things we thank God for.
Kayleigh’s stomach was back today, worse than it has been in a few days. I believe it is from the preventative antibiotic that she is taking. Evidently kids in this situation are particularly susceptible to a certain kind of nasty pneumonia. Thankfully, if they take this antibiotic three days a week it has shown to keep it away. But I realized today her particularly bad days coincide with the antibiotics. Ugh. Her doctor hopes that as we get off the steroid that it will help and she will be able to tolerate the antibiotic better. I am hopeful that we can figure out how to dose her stomach coating Medicine’s with the antibiotics in order to keep the stomach from hurting. Would you please pray specifically with us that we would figure out how to protect Kayleigh’s stomach and that the antibiotic would not hurt her stomach?
I am happy to report no headache today. That is truly wonderful news! If we can keep her feeling good the. We will look at another decrease this week. Each baby step down gets us closer to the goal of being done with these. We are going excruciatingly slowly on the decline just to be safe. If all continues to go well we hope to be done in 3 weeks. That’s another thing to pray for specifically!
Finally, tomorrow morning (Wednesday) at 10:15 CST Kayleigh has another MRI. We are praying big prayers for something remarkable. For good news of some sort. Signs of healing. My prayer for Kayleigh tonight is from the verses below.
Isaiah 53:4-5
4 Yet it was our weaknesses he carried; it was our sorrows that weighed him down. And we thought his troubles were a punishment from God, a punishment for his own sins! 5 But he was pierced for our rebellion, crushed for our sins. He was beaten so we could be whole. He was whipped so we could be healed.
Until tomorrow,
‘Carrow 💜
This floor has a space theme
The next floor was aquarium themed!
All the girls
the cool screen 
Did I mention that the screen was big?
The bridge at night from the top for Bass Pro
