Happy Friday!
I hope this post finds you all doing well. Our crew is holding up. We have moved everything from our little two bedroom apartment in Memphis back home. It is currently all unloaded from our cars into the middle of my living room and all over the kitchen. If my calculations are correct we should be able to find everything a home by 2027… The year Kayleigh graduates from high school!
I don’t know that I have ever explained what the current plan is for Kayleigh’s treatment so I’ll take a minute to fill you all in. We went back to Memphis at the end of August to enroll in an oral chemo trial that is very new. The doctors tell us that this is not the cure but that they hope it will help, slow down, shrink, the tumor while they are still researching. This trial was not our first choice but we prayed that God would direct our steps and He did July closing every door but this one. Based on Kayleigh’s most recent scans we are quite thankful for God’s perfect guidance and are praying that the miracles will continue.
So, once we were approved for the trial we had to stay in Memphis for a month in order for Kayleigh to be watched for any issues. This past Wednesday was the end of phase 1 of the trial so we were released to go home. Kayleigh can continue to take the two oral chemo meds for as long as they appear to be beneficial. We will return to St. Jude for scans mid-October and then we will start going every other month as long as things are going well. On the months we don’t go to St. Jude she will have labs done at the affiliate office in Huntsville. But that means when we finally get to October she only has to get stuck once a month – thank you Jesus!
So, our prayers for Kayleigh are
1.) We can figure out how to get her stomach feeling better.
2.) The tumor will shrink a little more each day.
3.) For anxiety to fade away and our bold, brave girl to feel brave again.
I can’t thank you enough for your prayers on my behalf. I was very concerned that I may have had strep last night but today was much better. The sore throat is nearly gone. The back is a little tricky but it’s ok. I’ve had wonderful offers from some
Great people for massages to help. Thank you all so much for taking care of us.
Finally, we have had an awesome day of support. Our very special friend, Andy Olive, is on a cycling quest. He began at the AL/TN state line this morning and is riding his bicycle all the way to gulf shores over the next two days!! Kayleigh was so excited to get to see Mr. Andy this morning. he rode through her school’s parking lot! She felt much better after having a moment to talk with him. She was VERY concerned that he wasn’t going to have anywhere to sleep, rest, or have food to eat. Andy reassured her that he had those things planned out so Kayleigh felt much better.
We also had numerous friends send us pictures of tonight’s high school football game. It was an away game for us in a town quite a little ways from here. Not only were our guys still sporting their purple Kayleigh stickers on their helmets, but the opposing team had a huge Prayers For Kayleigh banner. As a parent is it impossible for me to tell you all just how much the amazing support means to us. It fills me with gratitude and joy that cannot be described. Please keep the prayers coming. God has big plans for this little girl, I just know it. Plans for good and not disaster to give her a future and a hope (Jer 29:11)!!!
Until tomorrow,
‘Carrow💜
