Good evening friends! Tonight’s post is going to be brief because honestly I’m just exhausted!
It is so wonderful to be home but hard at the same time. Jumping back into sports, tackling school work, trying to figure out what to feed this busy family that is compliant for Kayleigh is a little daunting. Toss in laundry, house keeping, and going back to work and you’ve got one very tired (slightly frazzled) mama. So, if you have messaged me and I haven’t answered, please know I am trying to get back to everyone, sometimes I’m just not quick!
Even though things are crazy busy I do have a little bit of a Kayleigh update. We decreased the steroids again! Not much – we went from .5 mg am & .5 mg pm to .5 mg am & .25 mg pm. I know .25 mg is a tiny drop but even that little bit is enough to cause headaches. Today is our second day of the decrease which means the next 3 days are where we will be watching her closely for any bad side effects.
Her stomach is also slightly better today. It was actually pretty good this morning until about lunch but it went down hill from lunch on. Not as bad as it has been but bad enough to have her make repeated comments.
Prayer requests
1.) Healing this side of heaven
2.) steroid decrease to work with no head aches
3.) stomach to feel better
4.) her right side to strengthen
5.) the tumor to shrink a little more each day
We are noticing obvious right side weakness in her right arm, hand, fingers, leg and foot. That is not unusual due to where the tumor is pressing but it would be wonderful for her to start regaining some strength. She has always been right handed but she has begun to favor the left hand much more.
Thank you for your prayers!
Until tomorrow,
‘Carrow💜
