It has been a better day! Thank you Lord for blessing Kayleigh with a better day, it was much needed.
We were able to get her chemo back on track in the afternoon rather than first thing in the morning. We also made sure to get her anti-nausea meds and probiotics in her system ahead of the chemo and kept her diet very plain. All of those together made for a much better day.
She did however have a headache which we have not had to deal with in a couple of weeks. Because she was doing so well with everything we lowered her steroid dose slightly a couple of days ago. Usually day three (today) is when we start seeing how she will respond to the weaning. Unfortunately, Kayleigh’s little body has become very accustomed to the steroids and doesn’t like it very much when we lower them. It is our prayer that we will be able to keep her at the lower dose and manage any headaches with pain meds. Once her body adjusts to the lower dose, and we no longer need Tylenol, we will lower the steroids again. We very much want to get her all the way off these steroids but it is difficult. Please, please, please pray that we will be able to successfully wean her down to nothing.
Because she felt so much better today we were able to get out and about. We did some shopping, and visited with friends and enjoyed dinner with family. All in all today was a fantastic day! God is so good to encourage us with breaths of fresh air and we are so very thankful. He truly does supply our every need!
Philippians 4:19
And this same God who takes care of me will supply all your needs from his glorious riches, which have been given to us in Christ Jesus.
Until tomorrow,
‘Carrow💜
This picture is Kayleigh’s class – they are such wonderful, precious children! Her teacher is quite wonderful as well 💜
