Author Archive: 'Carrow McClendon

About 'Carrow McClendon

Kayleigh is a bright, fun, beautiful, 7 year old, little girl that was diagnosed with DIPG on May 11, 2016. This site is to share her journey and prayer requests.

May 17, 2016

A better day!

Yesterday was a rough one. Kayleigh’s headache just wouldn’t resolve itself. It made her sick to her stomach and generally awful feeling. Thankfully we were able to go straight to the hospital when we arrived at 9 pm and did not have to wait long for the doctor. Her oncologist prescribed pretty strong steroids for her to help get the symptoms in check while we finalize her care plans. We also found out that her stomach does NOT tolerate liquid steroids well. Those came right back up as soon as they went down 😳. Even through all of that she still had her sweet but sarcastic sense of humor. She told the doctor that those things were NASTY and made her puke so hard she puked out her nose! Those of you that know her can picture the full bodied attitude she said that with!

Thankfully, the steroids worked! She slept great and this morning she woke with no headache and no vomiting. Even her eye and facial features looked better. On the flip side of that she is talking 90 miles and hour, telling everyone exactly what she thinks (even more so than normal), and eating like a linebacker! We’re also thankful she likes fruit if she’s going to be eating non-stop!

We had expected to have our radiology consult today but her physician’s wife decided today was the day to have a baby! It has been rescheduled for Thursday and her oncologist seems to be fine with that as long as the steroids keep the symptoms in check. We know that God works in all kinds of ways so I’m certain that a baby rerouting our plans and bumping our consult out a couple of days has happened for a reason. For one, it gives us more days to cover our sweet girl in prayer! Please continue to stand with us. Our prayers are first for complete, miraculous healing! Second, if that request is not granted, we are praying for God’s plan to be made perfectly clear to Kayleigh’s doctors and that we will be able to start swiftly. And finally, we pray that we are able to encourage others we come in contact with both in person and via social media. It’s our prayer that others will read our story and understand that there is no way we could have hope in this situation except through Jesus.

Now we are off to a pool because a certain little seven year old has convinced us that it really isn’t bed time.

Love to you all,
‘Carrow 💜

P. S. – I think you might be able to see a little of the spunk in these. It was face painting and slurpee day here. And then we had Benihana!

image

image

image

image

image

May 16, 2016

What a wonderful day!

Today was Kayleigh’s last day of first grade. Her school, Crestline Elementary, held a Relay for Life walk in her honor and it was fantastic. So many friends and family came out to support her and make her feel special!

We are now on the road back to Memphis. Unfortunately, her symptoms are escalating. The headaches are more persistent and quite severe in some cases. I emailed her oncologist this afternoon and he was great to reply quickly. We are already scheduled to stop by the hospital tonight to see the on call doctor. They will probably give her some steroids that will hopefully help the symptoms and give her some relief.

Please keep praying! Prayers for healing and relief from the symptoms. Thank you for standing with us. God is good, all the time! No matter your situation – never give up, never lose hope. Even when God says “no” to your prayers, don’t lose faith. God’s plan is perfect and will be completed in His time and in His way. Hold tight to Jesus, there is no other way.

Love to you all,

‘Carrow 💜
image

image

image

image

image

image

image

image

image

image

image

image

image

image

image

image

May 15, 2016

Good Morning Prayer Warriors!

Yesterday was a wonderful day! Kayleigh had a full day of being treated like a princess at the softball field and played with many of her cousins at a birthday party. Day one of fantastic memories was a complete success.

Today is Sunday and we are going to worship with our church family, thank you Lord that we are able to do that! We are also going to be having a special prayer time for Kayliegh around noon Central Standard time. I know it is last minute, but if any of you are willing to fast and pray with us today until 1:30 p.m. we would very much appreciate it.

We are praying big prayers of big healing for this little girl! Thank you for standing with us.

Love,
‘Carrow

May 14, 2016

After a few roller coaster days we are thankful to be at home and doing “normal” things this weekend. Big Sis is playing softbal so we are watching and getting loved on by all of our softball family. A big shout out to our Ice Softball Family all sporting KB’s initials and number, the whole Tigers Elite organization for their posters and gifts and wearing her number, the Sparks for wearing ribbons in her hair, and for so many of the teams not here supporting our baby. LC Pride we love your picture, Hartselle 6u Gators thank you for the game ball, Florence Rec teams thank you for wearing her color and sporting her numbers, Saints, Strike Zone & Ardmore Adrenaline thank you for wearing her numbers, Woodstock Rec ball and umps thank you for praying. I know I’ve missed a zillion of you, please know we love tou and we thank you. Post your pictures to her page, they make her smile!

It’s going to be a long road but so far our goal of making fantastic memories is well underway. Keep praying, keep believing, keep calling, messaging and texting. We may not be able to respond, but your kind words are food for our souls.

Love you all,
‘Carrow