Oh want a beautiful Thursday!
It was so nice to sleep on our own beds last night. There is just something about being at home that allows you to rest better. It also helps to be well rested for busy days like today! It’s also a beautiful thing to wake up to pictures of a new baby on your phone. My college roommate welcomed a precious little girl into the world today. I cannot wait to get my hands on her!!
Being in this little lull, waiting for direction, the Lord is blessing us with some time to get things in order that we have been pushing off. One of the things I have been wanting to do since Kayleigh’s diagnosis was put together a clean eating plan for her and add the proper supplements to help her body work and heal at its highest potential. I can’t help but think that if her body is running better that everything should work better as well. I had been given the name of a doctor that specializes in that kind of thing right at the time of Kayleigh’s diagnosis but I didn’t have time to look in to it until last week. The doctor was very kind and went out of her way to get us on her schedule as quickly as possible. Today was that appointment and Kayleigh was a trooper.
Even without knowing all of Kayleigh’s background she was able to pinpoint so many things about Kayleigh and was spot on. She gave us good advise that made sense and is doable, all of which I count as a blessing. Some of her suggestions will be quite a lifestyle change for our family, but honestly, it’s things that I already do for myself like no processed foods and limiting sugar. Things I know make me feel better and make my body run better. And yes, I know changing her diet isn’t the magical cure for DIPG, it is however a step in the right direction to balance her little body and give it the tools it needs to fight off this nasty tumor.
While I was with Kayleigh talking about food, Tim was with Cole at the pediatric surgeon’s office talking about the lump on his neck. Tim only had good things to say about the visit. The doctor says it is something we should address but that it is ok for us to get this first part of Kayleigh’s trial selection out of the way and then schedule the appointment at our convenience. Cole isn’t to excited about the word “incision”, actually he does it like it at all. But it was really cool to watch Kayleigh explain to Cole about incisions and how they don’t hurt since you are asleep. Which led to how you get put to sleep, which led to IV’s, and that was a hysterical conversation. When Cole asked if he would have to swallow the IV I though Kayleigh would loose it she was laughing so hard. After laughing at him for a little bit and telling him all the places he could possibly get an IV she finally calmed his fears by telling him it wasn’t bad, just a pinch, and then you wouldn’t know anything. She even showed him her stitches so he would know what they look like and not be afraid. That’s a big deal for her!
After Kayleigh’s appointments we swung by my grandparents to visit. It was wonderful. My aunt and little 2nd cousin joined us as well and we had a great afternoon. We made it home just in time for big sis, Grace’s, 6th grade orientation and softball practice.
And then, if that wasn’t enough for a wonderful day, we had a sweet young friend call to tell us that she asked Jesus into her heart because she wanted to be like Kayleigh. I can’t tell you how wonderful it was to get to tell my sweet girl about that. So many days I tell
Kayleigh she is making a difference and every day she says no she isn’t, she can’t, she’s just a kid. But today, she couldn’t argue, her friend called her out by name saying she made a difference. And that gave my baby happy tears. I’ll take years of joy any day, those do a mommy’s heart good!
It’s a wonderful day when I get to post such a positive message. God has been oh so good. My devotion today was about God’s unconditional love. How wonderful is it to know that we don’t have to do anything, be anything, or change anything for God to love us? That he loves is just the way we are? Today I have felt that love being poured out on me. God knew how my heart was battered and He sent wave after wave of his unconditional love. I certainly didn’t do anything to warrant it, but it came. It came as prayers from friends and strangers alike. It came as encouraging words from friends. It came as good news. It came as hugs from friends. It just came.
1 John 3:1
See how very much our Father loves us, for he calls us his children, and that is what we are! But the people who belong to this world don’t recognize that we are God’s children because they don’t know him.
Until tomorrow,
‘Carrow💜
My girls, my Granny & sweet Nora
My Granda & Kayleigh
Granda & Grace
Grace & Nora
Nora sharing kisses 💜