Radiation 21 of 30 is in the books.
We made it safely back to St. Jude today. Kayleigh had radiation #21, vitals and her radiation oncologist visit today. We had to fill them in on last weeks eventful “try to get off steroids but be very unsuccessful” escapade. They seemed to be please that we are still sitting at only 1mg total for the day. It is even possible for her to need a higher dose as we complete radiation because radiation itself can cause swelling. Please pray very specifically that Kayleigh is able to stay at this 1mg dose and possible wean lower!
My precious friend Patty came to visit today. She was on her way from Nashville to Birmingham and decided to “just swing through Memphis”. If any of y’all have looked at a map you will know that while we are in the same state as Nashville we are WAY out of the way for Birmingham. Kayleigh thoroughly enjoyed showing her around and Tim and I were thrilled at the hour we had to unpack our stuff while Patty entertained her!
So tonight we are happily unpacked and settled in for the week. We’ve stocked up on snacks and drinks and I’ve done laundry. With just the 3 of us here this week I am hoping for a little R&R.
Prayer Requests:
1.) Complete healing this side of heaven!
2.) Kayleigh is able to at least stay at 1mg of steroids/day – and go lower if possible!
3.) Direction of Tim & I as we continue to work on phase 2. We are seeing God in big ways on this one. We don’t have a decision but I am very much looking forward to telling the story of how God puts it all together. Just the little pieces we are seeing tells us that all of our prayers are moving mountains – don’t stop!
4.) Rest. We are tired. Last week was a doozie. We were pretty dang frazzled by Friday. I personally was an emotionally wrung out dishrag crying at the drop of a hat. Then we run non-stop when we are home trying to cram everything in because we want to share Kayleigh with as many people as possible. It’s a perfect storm of exhaustion. So this week out goal is to regroup and rest!
Thank you all for standing with us. So often you are what holds us up and keeps us going. We cannot begin to tell you what that does for us.
Until tomorrow,
‘Carrow💜
I didn’t get a single picture today! I will do better tomorrow 🙂