It’s been a good day at our house. We had big plans to get Kayleigh out tonight for the Fall Festival at First Baptist Hartselle. Since we knew that was going to be a large undertaking we kept things very low key all day. Making sure Kayleigh rested and save her energy was the goal.
Thankfully, the steroids have helped some and her speech was a little better this morning. They also made her incredibly hungry. I mean… WOW… She was asking for more food before she finished what she was eating. And that went on all day. The only time she wasn’t saying she was hungry was when she was sleeping! Even tonight after I tucked her in to bed, she had just polished off a steak, chips, jello and chocolate and was asking for more.
One of the fun things we do each year with all of the cousins is pick a theme and dress up. The Flintstones, Wizard of Oz, Superheros, Ninja Turtles, Star Wars… It’s fun. When we started it was the five cousins but we’ve expanded significantly. This year we have 8 cousins and Kayleigh picked the theme (Scooby Doo) and told everyone who she wanted them to be. It turned out great.
Kayleigh was excited about getting to dress up but nervous about getting too much attention. At home her disabilities don’t bother her much, but going out with so many people she doesn’t know (but know her) was scary. But as always, she was a trooper. She took pictures with people, gave out hugs and tried to answer questions – if she could hear them. Her hearing is failing significantly and her speech is slow, that makes normal conversation hard. She made it almost an entire hour before she finally allowed us to bring her home.
Finally, right before bed, we had a special visitor sneak in and read Kayleigh a story. Sweet Rory picked out the most precious book. It’s one of those times where God just worked out the timing. Kayleigh should have been asleep when they came by to drop Grace off but Kayleigh was wired and wide awake. Sometimes visitors make her a little uncomfortable, but this was her friend and it was just what she needed. A friend to sit with her. One that didn’t want to talk, she read her the story and just kept her company. I am discovering that some children just inherently understand how to help
Kayleigh – it is beautiful. Now Kayleigh’s tucked in and sleeping hard.
Would you pray with us tonight for some specific things?
For the steroid side effects to lessen
That she would sleep well
That she would not be so starving
For anxiety to ease
For no headaches
Speech to be clear
Breathing to stay strong
Complete, miraculous healing – this side of heaven – soon.
Thank you for continuing to walk the journey with us each day. Thank you for stopping us when we are out to let us know you are praying. Thank you for holding us up in prayer each day. We love you.
KB’s Super hero💜
Scooby & a snack!
Grace & Gracie
Sweet Rory reading to Kayleigh